(The Perception of) H1N1 is Out of Control
Key points:
1. H1N1 diagnosis techniques might be (and I repeat—might be) leading to exaggerated statistics regarding the prevalence and spread of the flu strain.
2. These factors combine with others to create a ripe environment for positive feedback loops that take us from healthy skepticism to acidic lunacy.
3. We need our rhetorician in chief now more than ever to ask everyone to take a deep breath, calm down, and get out of the way for those of us who need the vaccine first.
It was almost MEA weekend.
The kids were looking forward to the four-day weekend. That is, until they were sent home with a fever. Uh-oh.
We called the HealthPartners nurse advice line. And they gave us the diagnosis: H1N1. Swine flu. We could expect five-to-seven days of fever, aches, pains, and upper-respiratory distress. If things got worse (in some terrifyingly specific ways), we were to get the ER at Children’s Hospital—immediately.
But luckily, it didn’t work out that way. After about 24 hours, the fever subsided. In fact, it never got too high in the first place. One boy was back in school on Monday, and the other went back on Tuesday.
That seemed odd. That didn’t seem like the “flu”—even a new strain. And as I come to find out from HealthPartners, I am likely correct. They probably had a bad cold. Nothing more.
This got me thinking about methodology, statistics, positive feedback loops, and ensuing media hype.
Let’s start with methodology. Of course, that’s just a fancy way of saying, “How do we count the number of cases of H1N1?” Are the Centers for Disease Control and Prevention (CDC) and the National Institutes of Health (NIH) counting reports from clinics like my local HealthPartners? If so, how many unverified diagnoses are really other illnesses masquerading as the flu? In a recent Minnesota Public Radio interview, an NIH official said it’s tough to tell without a formal lab test (the “quick test” at your doctor’s office is not sensitive enough to tell flus apart). In that case, the CDC will need to extrapolate from confirmed cases to the entire universe of cases—in a chaotic disease environment like a normal autumn, those estimates can be off by an order of magnitude.
So if that’s the basis for the data, what are we to make of the statistics? A recent study claimed more than 65 percent of the U.S. population would be exposed to H1N1 before it’s all over. Another study claimed 95 percent of the flu circulating right now is H1N1. Huh. Based on the “boots on the ground” data collection so far (telephone diagnoses, student health workers combing the dorms at the University of Minnesota, etc.), I’m not so sure. I am not saying I don’t believe them—I’ve just got some healthy skepticism.
Unfortunately, “healthy skepticism” is not where it stops for some people.
This is where you get positive feedback loops. A lack of facts, oddly fantastical statistics, and a slow-growing vaccine combine to create a ripe environment for fish tales of all types. Let’s look at one such spinning loop:
Loop 1: The vaccine was rushed; luckily it is close genetically to seasonal flu.
Loop 2: The vaccine was rushed too fast. It is not safe.
Loop 3: All vaccines are unsafe (this claim feeding on real, but statistically minute, evidence that vaccines cause serious—and sometimes fatal—reactions in a tiny fraction of people).
Loop 4: The government and “big pharma” are asking us to do something that could hurt us.
Loop 5: This must be about campaign contributions.
Loop 6: There is a conspiracy theory afoot. The government must have had a role in actually creating the virus.
Loop 7: Now they are holding up the vaccine to see how it spreads for their nefarious experiments.
Loop 8: This is a way to get revenge on those people who “don’t believe in” vaccines—the government wants to control our lives.
Loop 9: We can’t let them! We must resist! We can’t take this vaccine! H1N1 is a total myth—a lie fabricated to deny us our liberty.
(Don’t believe me on this one? Search YouTube for yourself. Spooky stuff.)
Here’s the rub: Each loop in the sequence contains a bit of logic; it takes a small leap to make it from one loop to the next. They build on each other. They create media attention that feeds on itself. It creates an environment in which sheer lunacy can derive from tiny logical infractions at each stage.
All of these “voices” demand media attention, attention which has more than quadrupled since a small peak back in May of this year. A classic hype environment.
If this is a “dry run” on what a true killer pandemic might look like, we’re not doing well. The problem is simple: In the absence of a central source of reliable information, and a clear voice, we get crashing phone lines at Park Nicollet clinic, wing nuts on the radio (and in even in Congress), and a growing distrust of any authority figure that will lead to an even more difficult communication environment next time around.
Yikes.
Those in the medical communication field, who should have control over the messaging around H1N1, have completely ceded that role to a cornucopia of voices—some legitimate, some clinically insane, and no easy way for the average person to tell the difference.
We need some adult supervision. Right now.
Mr. President, if there is ever a need for your rhetorical power, now is the time.
I might even humbly suggest a script:
My fellow Americans. I understand many of you are concerned about the rapid spread of the H1N1, or “swine flu.” You’re wondering if your family is safe. You’re wondering what you can do to protect them. And your wondering how the government and the health care system are working to solve the problem.
Here is what you need to know. H1N1 is spreading fast, but it is not unlike seasonal flu. It may affect people differently than the flu we are used to every year, but it’s not really any more—or less—serious. That means if you are an expecting mother or you have young children with asthma or you have underlying health conditions or you are a first-responder health-care worker, your doctor will likely recommend that you get the H1N1 vaccine.
And that vaccine is coming as fast as it can. I know it is slower than we thought it would come. Manufacturing is proceeding as fast as it can, but we are behind where we hoped to be at this time. I know that’s led to a lot of concern. Be assured we are working to distribute the vaccine that we do have in a coordinated way, so that the people who need the vaccine can get it first. That means if you are an otherwise healthy adult, you will be expected to wait your turn. That includes me.
Now, I understand there are a lot of rumors circulating. A lot of misinformation. I am here to tell you that misinformation is more dangerous than the flu itself. It is OK to be a little worried. It’s smart to take precautions—like washing your hands, avoiding contact with sick people, and staying home if you get sick. If that sounds familiar, it should be. It’s the same advice you get every year to fend off seasonal flu.
But it is not OK to misrepresent information, stoke rumors, and spread fear just to get a few more Twitter followers. We have the right to speak our minds but also the responsibility to speak the truth. We owe it to each other, to our communities, and to our children.
Over the coming days and weeks, you can rely on flu.gov as well as your local doctor to be the authoritative sources of information about H1N1. We’ll post information and updates. We’ll do our best to get you in touch with your local communities who are working around the clock to distribute vaccine to everyone who needs it first. It’s our job to get you the information you need to make an informed decision for your family. No one will force you to get a vaccine if that’s your choice.
It’s no fun to get sick. I get that. But together—with a coordinated effort between federal, state, and local government, health care providers, vaccine manufacturers, your local doctors and clinics, schools and churches, and you and your families—we will come out of this just fine. We all play a role. We all have to be smart. We all need to work together.
Thank you, and may God bless the United States of America.
Almost anything would be better than the status quo.
Related links
Flu.gov
Or trust YouTube. (Good luck with that)


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